Our Goals & Priorities

POLICY

At the Lipedema World Alliance, we’re committed to advancing the understanding of Lipedema and pioneering breakthrough treatments. Our efforts extend beyond research to actively engage with the wider public and health institutions. Specifically:

  • SHARING KNOWLEDGE: We're dedicated to disseminating knowledge about Lipedema and the latest treatment advancements to the broader society. Through informative initiatives, we aim to raise awareness and empower individuals with reliable information.
  • INFLUENCING POLICY: LWA collaborates to shape health policies with meaningful contributions. We provide concrete proposals and insights to esteemed health organizations like WHO, ensuring that our advocacy is informed and impactful.

RESEARCH

Our commitment to research excellence drives our initiatives to foster collaboration between clinicians and researchers in the Lipedema community. We recognize the significance of interdisciplinary connections in producing high-quality research outcomes. Our priorities include:

  • CONNECTING PROFESSIONALS: We serve as a pivotal link between diverse professions and disciplines. By promoting collaborations, particularly through multicenter projects, we pave the way for impactful research that transcends individual efforts.
  • SETTING RESEARCH AGENDAS: As research interest in Lipedema surges, we take the lead in identifying and prioritizing research topics. Our international and interprofessional dialogue helps us steer research focus towards reproducible and enduring results.
  • GLOBAL NETWORKING: Overcoming the challenges of patient selection is crucial for research integrity. Through partnerships with regional patient advocates, we simplify the process of recruiting representative patient samples. This enhances research accuracy and relevance.
  • FACILITATING DIALOGUE: In a field where personal connections have driven information exchange, we recognize the growing importance of organized interactions. LWA facilitates a platform for researchers to share insights, methods, and results through regular organized meetings.

DIAGNOSIS & TREATMENT

In the realm of diagnosis, LWA strives to establish consistency and innovation. Our goals in the diagnosis domain encompass:

  • GLOBAL DIAGNOSTIC CONSENSUS: We're dedicated to forging a consensus on internationally recognized diagnostic criteria for Lipedema. This unified approach enhances accurate diagnosis and fosters a common understanding across borders.
  • EXPLORING NEW DIAGNOSTICS: At LWA, we ignite discussions around novel diagnostic approaches. By encouraging conversations and collaboration, we drive the development of cutting-edge methods that improve diagnostic precision.
  • CULTIVATING NEW THERAPIES: LWA acts as a catalyst for exploring fresh therapeutic avenues. Through thoughtful dialogue and collaboration, we aim to spark innovative approaches that enhance the lives of those affected by Lipedema.

At the Lipedema World Alliance, our mission revolves around unity, knowledge dissemination, and impactful change. We invite healthcare professionals, researchers, and passionate representatives from patient associations to join us on this transformative journey. Together, we’re shaping a world where Lipedema is better understood, treated, and ultimately, conquered.