Sharie Fetzer

LWA – Lipedema World Alliance

Sharie has been Chair of charity Lipoedema UK since 2014, initiating numerous patient surveys and publications. She was on the task force of the Royal College of General Practitioners e learning course on Lipoedema and Wounds UK Best Practice Guidelines for the Management of Lipoedema. Sharie’s projects include diet and lifestyle research and NICE review of  non-cosmetic liposuction for lipoedema patients. She is passionate about raising awareness of lipoedema to healthcare professionals and exited by the opportunity for outstanding doctors and researchers to create new standards of patient care through Lipedema World Alliance.

Lipoedema UK

Lipoedema UK is a passionate community of people affected by lipoedema and healthcare professionals; working to improve awareness, early diagnosis, treatments and research. We believe that the best way to improve the lives of people living with lipoedema in the UK is to collaborate internationally with reputable and experienced healthcare professionals and researchers, to establish international standards of care and well-researched guidance created in partnership with people affected by lipoedema. Lipoedema UK was one of the first lipoedema charities, founded in 2012 by women living with lipoedema and healthcare professionals from St George’s Hospital, London. Lipoedema UK’s Big Survey 2014 was the first piece of research to give voice to challenges of lipoedema and peoples’ lived experiences. The survey’s evidence on the difficulty in obtaining diagnosis, led to Lip UK partnering with the Royal College of General Practitioners to create the first lipoedema online Continuing Professional Development module. No-one should suffer alone, or be unaware that they have lipoedema, so we encourage a vibrant community of those living with lipoedema to come together for mutual support, and raise the aspirations for best practice treatments and standards of care worldwide! #TogetherWeCanBeatLipoedema