Dedicated patient advocacy plays a crucial role within the Lipedema World Alliance (LWA). Our organization thrives on a patient-centric approach, integral to advancing research, clinical care, and treatment solutions. Patient input forms the cornerstone of disease management, treatment design, clinical trials, and health innovations.

Our commitment to patient-centricity entails actively involving patients and their representatives to collect insights and opinions. Decisions are then guided by their medical conditions, experiences, needs, perspectives, and priorities. By cultivating this collaborative dialogue, the LWA aims to foster an environment where patients’ expertise is not only valued but also strategically leveraged to drive enhanced research outcomes and improved global health for all affected by lipedema.